Dear Copaxone... 10/26/2010
 
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okso I just did day 2 of my Copaxone shots. Uhm.....suck. It kinda hurts. I mean not having flu like symtpoms, the chills, any of that crap was nice. After a few minutes I don't even know I took it. That is pretty awesome. BUT for about 10 minutes or less after wards....yikes..it kinda hurts. Not like worst pain of your life hurt, just like wow could that burn anymore. I think the hardest part is that you can't rub it. Like I just wanna rub it, as if to say "dont worry leg, it will all go away soon" but I can't. Instead its like an itch you can't scratch. Its that stinging sensation after something, or the tenderness after getting punched. It doesn't exactly hurt...its just there. You just can feel that spot of your body in a way you don't normally feel it. Well...so far so good. 2 days down. I'm doing much better this time, than when I was on Betaseron. I can do my shot and be done in about 5 minutes, as opposed to just staring at the needle for about an hour before I either did the shot or gave up. I'm in a far different place now with needles than I was before. I've now had 4 medicines that require injections...so I'm pretty much over it now. I also do a manual injection because I effing hate those stupid injector things. They use so much force and pressure..its no good.

What about you? Have you switched meds? How's your fear of needles?
 


Comments

stevedomino link
10/27/2010 02:33

hey there - i use the RebiSmart auto injector (apparently their website is not intended for US and UK residents but i got the device no problems - http://www.rebismart.com/).

so i don't see the needle at all - it can be uncomfortable and i agree with you about some injection sites - in my arms i can get crazy itchy, my gut flares up with hard red marks, my legs are no problems at all.

i went through a period of actually looking forward to doing the jab when i first started on meds - i'm less crazy about regular injections now, but it still beats the hell out of two relapses a year (none in the last 12 months)!

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David
10/28/2010 00:21

I've been on copaxone for about a year and a half. I can totally relate. Every time I take it I get that stinging sensation that I just won't to rub. But I can't. The worst spot is my stomach. Whats worse is when you hit a muscle. Man, it feels like the worst monkey bump you have ever had. And takes like an hour to go away. I like taking my shot before I go to bed so that way I don't notice the stinging once I fall asleep. Good luck with copaxone!

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Andrew Denney link
11/07/2010 09:22

Hi Jackie,

I'm on this one too - about two months in now and so far so good. I had a terrible time with the needles to start with but then found the trick to getting over it was to watch. More on that here:

http://endofcomplacency.wordpress.com/2010/10/13/when-you-look-away/

Great to have you back online and hope things continue to get better.

Andrew

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Rachel link
11/18/2010 09:59

Hey, just stumbled on this site - love it.

As for the 'xone, I've been on an 'F this' kick - after approximately 1,000 shots - and can't wait for the new pills.

If you were tired of the avonex shots, how is the 'xone Not driving you nuts?

cheers,
rth

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Leon
01/03/2011 03:11

Hi Jackie,

I've been on Copaxone also, but only for a little bit. I quit after 3 or 4 months. I was doing so much worse while using it. Had a lot of problems with the injections also. A lot more than with betaserone I used a coupel of years ago (didn't help a bit either).

I had a balooning procedure (CCSVI) done 3 months ago, but only on one side, done in Germany, and THAT did help! I have a better balance, I can walk up to 10 yards (have been using a wheelchair for that even, teh last 6 months), my eyesight has improved, I can take a shower standing up without falling over. I'm scheduled for another treatment in Belgium, February 9th. No more medicine for me.

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